“If Science won’t move for you: Move Science!”
This has become my motto this year – when I realised that Oxytocin was a missing link in Hormone Replacement therapy for Craniopharyngioma survivors (and other pituitary patients) I sent out this Plea hoping that someone somewhere would see the sense in my theory and want to put it to the test. I was really chuffed at how ‘viral’ this plea went, after all Nurse Naomi is a rather cosy blog with a select group of high quality followers (yes, that’s you :-)), so over 1K shares in only 3 days and a viral reach of over 25,000 on Facebook, I thought, was pretty awesome. Naturally things petered out then.
(Wait! Want to know what I’m talking about? Check out this post and follow the links for the full story chain!)
As I’ve continued Hana’s Oxytocin therapy I decided that it was high time movements were made to improve the lives of others in the same situation and the decision to jolly well ‘do it myself’ was born. However, once the draft was written I was excited and surprised to find interest in what I was/am doing by two high profile Professors and Medical Specialists in the USA…
Interest from Specialists in the USA!
The report is in draft form right now – and I’d emailed one particular specialist, a Professor in the USA to thank him for a paper he’d put together that I’d used in my references. What I hadn’t been expecting was his enthusiastic reply and his interest in collaborating with me on the paper! The paper is with his colleague now – I am, (of course!) open to their input and would willingly have them contribute to the paper if they believe they can help me strengthen it and increase it’s chances of publication. He is interested in trialling the effects of Oxytocin treatment for social improvements in Pituitary patients and so was VERY interested in the positive results I’d found with Hana.
I also had a long Skype call with another specialist in the USA who believes that Oxytocin could play a role in treating Hypothalamic Obesity (YES! Remember this post waaay back? WOW! Is this a potential Cure for my Daughter’s Extreme hunger and Obesity?)- he is hoping to conduct trials on this at some point.
All in all it’s bloomin’ exciting that the World First I’ve been conducting in the comfort of my own living room has attracted the interest of these movers and shakers in the USA.
I’ll keep you posted on the Case Report- who knows whether I’ll manage to get it into a robust medical journal – if I don’t I’ll find a home for it somewhere as I sincerely believe this ‘knowledge’ has to ‘get out there,’ so science truly can move forward.
I’ll update soon on Hana’s progress as we’ve started enacting our short-term plan to combat her obesity and hyperphagia. Meanwhile please remember to touch base with me on Facebook here and Twitter here, I’d love to hear from you.