Three years ago my daughter suffered enormous fallout from her surgery and I pledged myself, lifelong, to finding a cure. I want to tell you something: I no longer need to find a cure for Hana (although I am working for one). The most incredible transformation has happened over the last six months as I…
‘Everything that surrounds you in your life right now…you’ve attracted.’ – Dr Joe Vitale, The Secret But, what about my daughter’s brain tumour and post surgical catastrophic fallout? I didn’t will my daughter’s brain tumour into existence! I didn’t WISH that she suffer chronic health issues after her surgery that put her life in constant…
When Hana woke up from her surgery with a damaged brain my first thought and only instruction to myself was “FIX IT. And don’t rest until you do.” You know the story. I spent 2.5 years trying to FIX IT – I was prepared to fight to fix it until the day I died. And…
‘I’ll let you do that then,’ says hubby as I excitedly unpack my batteries, ready to hook my brain up to electricity. ‘That’s going no where near my brain.’ He looks something akin to horrified. ‘This is for Hana, habibi,’ I say, plugging in the electrodes, ‘I need to try it out, how can I…
Just over two years has passed since the incredible day it ‘clicked’ that not only was Oxytocin missing from Hana’s medication regime (and, at the time – in my opinion -in the regime of every single Panhypopit patient in the WORLD) but that she NEEDED it and MUST have it. To my surprise, my initial…
The day my 8 year old daughter told me she wanted to die, was quiet. She was sitting at the table working on her mindfulness colouring book. I knew her headache was bad, that was why my five year old Maryam was playing in the fairy garden in the late afternoon sun, but she was…
Just in case you missed us on TV recently, here are the links. We’ve been lucky to have a wonderful team follow and document our story with love and care over the past 6 months – here are the shows to date: Sunday March 13th 2016 https://au.news.yahoo.com/sunday-night/features/a/31073201/healing-hana-the-little-girl-who-cant-stop-gaining-weight/ Sunday March 27th 2016 https://au.news.yahoo.com/sunday-night/features/a/31181097/update-the-little-girl-who-cant-stop-gaining-weight/
When I say I studied Philosophy as an undergrad people think I spent all day eating toast, sitting around contemplating the meaning of life. I admit, I did do that a bit, but I knew deep down that all this thinking would help me kick ass at some point in my life. To be fair,…
How to make a decision on your child’s health when 1. You don’t like any of your options 2. You know that whatever you chose, the fallout will most likely impact upon your child for the rest of their lives? After the devastating fallout from Hana’s first surgery to remove her tumour my husband and…
The words slip out automatically – ‘We have another battle on our hands,’ ‘We’re going to fight this together.’ It’s the cancer lingo, jargon everyone uses to talk about cancer. The implication that Cancer is the foreign body, the enemy inside, something to be battled, fought, rallied against and…hated. Hated? I’ve used these words with…
