Category: Consumer Advocacy

The Story behind the Oxytocin Case Report (Now published in JPEM!)

Just over two years has passed since the incredible day it ‘clicked’ that not only was Oxytocin missing from Hana’s medication regime (and, at the time – in my opinion -in the regime of every single Panhypopit patient in the WORLD) but that she NEEDED it and MUST have it. To my surprise, my initial…

Why telling ‘Patients’ not to read the Internet is Utter Nonsense & Fosters Consumer Disempowerment

“Whatever you do, don’t read the Internet!” The first time I heard of a fellow consumer being told this by their treating Health Care Professional (HCP) I almost choked on my second coffee of the day. “Bollocks!” I roared, ‘How..?’ Then I found myself speechless with indignation, opening and closing my mouth like a dumb…

“If Science Won’t Move for You: MOVE Science!” Oxytocin and how YOU are Moving Science!

Science is moving forwards and it’s you guys that are moving it! I’m hearing there are some Oxytocin changes on the grapevine and some of it is thanks to YOU for reading and sharing my posts on Oxytocin and Hana’s trial and for persisting and believing that treatment for Pituitary patients could be better! Of course…